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Cystic Fibrosis 101 and Amazon.com Bookstore present you the following books:



Cystic Fibrosis : Nutritional and Intestinal Disorders
by Ross W. Shepherd, Geoffrey J.Cleghorn

The Breathing Disorders Sourcebook
by Francis V. Adams, MD
This book describes normal breathing and specific lung diseases with the goal of increasing patient understanding. Suggestions for the proper diet, lifestyle changes, and specific breathing exercises are given for individuals with lung disease.

Cystic Fibrosis : Current Topics
by J. A. Dodge (Editor), D. J. H. Brock (Editor), J. H. Widdicombe (Editor)

Cystic Fibrosis : The Facts
by Ann Harris, Maurice Super
University of Oxford, U.K. Third edition of a concise text for the patient with cystic fibrosis, families, and care givers. Describes the disease, treatment, and coping strategies.

Cystic Fibrosis
by Pamela B. Davis (Editor)
From Book News, Inc.:
Covering all major aspects of cystic fibrosis (CF), this reference provides a conceptual framework for understanding the disease--with particular emphasis on the lung.

Cystic Fibrosis (Venture Books : Health and the Human Body)
by Alvin Silverstein, Virginia Silverstein, Robert Silverstein
From Booklist:
The authors explain what CF is, how it is transmitted, and how it affects those who have it, paying particular attention to the respiratory and digestive problems it can cause. They also include a chapter on treatment and research, including a look at ethical issues. Diagrams and photographs help readers better understand how the illness progresses through the body. Patricia Braun

My Heart Is Full of Wishes (Publish-A-Book)
by Joshua Grishaw, Lane Yerkes (Illustrator)
For kids age 4-8 y.o. From Unknown author:
This very coloful, upbeat book appeals to the heart of every CF child and lets them know they are not alone. Joshua Grishaw is a gifted little boy.He writes about his dreams of being a superhero during the daytime while confronting the fears every CF child knows during the night.

A Parent's Guide to Cystic Fibrosis (University of Minnesota Guides to Birth and Childhood Disorder)
by Burton L. Shapiro, Ralph C. Heussner

A Time to Die
by Lurlene McDaniel
From the Publisher:
Sixteen-year-old Kara Fischer has cystic fibrosis and only months to live. But the close-knit bond she develops with Vince, who also has the disease, helps her come to terms with her own illness. Given one last wish, Kara wonders if miracles could really happen.

Turn It into Glory : A Mother's Moving Story of Her Daughter's Last Great Adventure
by Meg. Woodson, Meg Woodson

Understanding Cystic Fibrosis
by Karen Hopkin

Alex - The Life of a Child : The Life of a Child
by Frank Deford
A battle against cystic fibrosis; a poignant and uplifting story which touched the heartsof millions when it was first published and then made into a memorable TV movie. In a new Introduction, the father summarizes some of the developments made in combating the disease and tells how the family has come to terms with her loss.

Naked Before God:  The Return of A Broken Disciple
by Bill Williams, Martha Williams
From the Back Cover:
The question "why?" has haunted Bill Williams ever since his two siblings died of cystic fibrosis. As he himself grapples with the disease, he records his struggle to answer that question. Written from the perspective of Nathaniel, an imaginary disciple of Jesus, this cystic fibrosis patient wanders through the Gospel narratives revisiting a theology of suffering from his own unique perspective. Arguing with Jesus and the other disciples, Nathaniel seeks healing for his soul even as his body falls apart. In painfully honest language, he demands to understand grace, suffering, and forgiveness and seeks to know the reality of God's love for him.

Cystic Fibrosis : A Guide for Patient and Family (2nd edition)
by David M. Orenstein, director of one of the nation's leading CF centers
This book offers clear explanations and real-world advice on cystic fibrosis and its management. Patients, families, and health care professionals will find practical and reassuring information on day-to-day concerns--school, travel, exercise, nutrition, medication--as well as on physiological effects, treatments, complications, long-term issues, and the prospects for a cure. The book also provides a handy glossary of terms ... a glossary of commonly prescribed drugs ... techniques for clearing the airway ... recipes new chapters on genetics, the basic cellular defect in cystic fibrosis, and cystic fibrosis and adulthood.

Cystic Fibrosis (Venture Books : Health and the Human Body)
by Alvin Silverstein, Virginia Silverstein, Robert Silverstein

Cystic Fibrosis
by Margaret E. Hodson, Duncan M. Geddes (Editor)
A textbook reflecting advances in the field, for clinicians, scientists, and paramedical staff.

Cystic Fibrosis (Molecular Medicine)
by Peter Goodfellow (Editor)

Cystic Fibrosis: A Family Affair
by Jane Chumbley
This book is divided into three sections; the first is a guide for parents, with a section answering the bewildering questions that are often asked. The second section covers life for young adults who have CF and the practical and emotional difficulties faced by their families. The third section covers the prospects of new treatments for CF and the progress of research into gene therapy. The book offers real hope in the face of life threatening illness.

Children With Visual Impairments : A Parents' Guide (The Special-Needs Collection)
by M. Cay Holbrook (Editor)

In the Shadow of Illness : Parents and Siblings of the Chronically Ill Child
by Myra Bluebond-Langner

Understanding Cystic Fibrosis
(Understanding Health and Sickness Series)
by Karen Hopkin
from Bulletin of the Menninger Clinic:
"In the Shadow of Illness is a beautifully written, well-organized book that is an outstanding contribution to our understanding of the impact of chronic illness on the family.... An important source of information and understanding for families who find themselves in the shadow of illness."

Cystic Fibrosis : Medical Care
by David M. Orenstein, Robert C. Stern, Beryl J. Rosenstein





Last update: May 28, 2000